World Haemophilia Day celebrated at End Point2 min read
Manipal: The Manipal Haemophilia Society and Kasturba Hospital along with the Novo Nordisk Haemophilia Foundation based in Zurich, organised celebrations to mark World Hemophilia Day on April 19 at End Point. The event was held to address crucial issues concerning haemophiliacs.
The core objective was to increase the awareness of haemophilia, a genetic disorder that impairs the body’s ability to control blood clotting and to bring the needs of those affected to the attention of the wider public. “Hemophilia is a kind of disease which hinders these children from a lot of activities. Today was aimed at making sure they had fun without worrying about their illness as they would be given blood infusion by a trained team after going back to their camp”, said Sujith Thankachan George, a third year Manipal College of Nursing (MCON) student and a volunteer at the event.
The main attraction was T-10 Cricket, a 10-over cricket match between Manipal University (MU), led by Dr. H.S. Ballal, Pro Chancellor of MU and Haemophilia XI, led by former Indian wicket-keeper and chief selector, Syed Kirmani. The MU team which included other administrative officials of the university won the match by 54 runs. “All the players did a great job, and the ground was the perfect place for the match. It was a great game”, said Syed Kirmani.
The events also included Sa Re Ga Ma 1..2..3..4, a mass musical exercise involving a Thera-Band with music composed by the Manipal Haemophilia Society. Kite Flying by a team of international kite flyers from Mangalore also added colour to the evening along with paintings by artists from Souparnika Art Gallery, Manipal. “All the paintings were interpretations of the artists’ feelings about the illness, nature, people etc. This was a great opportunity to showcase our work and the paintings were beautiful”, said Venkatesh Desai, Manager of Desai Creativity and also one of the artists present.
Also present for the celebrations were Malathi Holla, Paralympics medallist who motivated the audience with her speech and Dr. M.V. Kamath, Hon. Director, Manipal Institute of Communications who also addressed the crowd.
Sub-edited by: Shiv Nair